前NFL明星克里斯·约翰逊确诊渐冻症


2026年6月29日 / 美国东部时间上午9:52 / 哥伦比亚广播公司新闻

前NFL明星克里斯·约翰逊宣布自己被诊断出患有肌萎缩侧索硬化症(ALS,又称卢伽雷氏症)。

现年40岁的约翰逊表示,他是在去年拿到的诊断结果。他在接受《早安美国》采访时公开了这一消息,该节目联合主持人迈克尔·斯特拉罕本人也是退役NFL球员。采访于周一播出。

约翰逊说:“如果分享我的故事能帮助哪怕一个人更早得到诊断、推动更多研究,或是给其他家庭带来希望,那么这一切都是值得的。”

他告诉斯特拉罕,医生认为他患的是“散发性”渐冻症,因为他家族中没有渐冻症病史。根据美国国立卫生研究院的数据,绝大多数病例——约90%——都属于散发性,意味着不存在遗传或基因关联。

渐冻症,即肌萎缩侧索硬化症,是一种进行性神经退行性疾病,会影响大脑和脊髓中的神经细胞,切断大脑与肌肉之间的连接。据渐冻症协会介绍,患者最终会丧失行走、说话、进食和呼吸的能力。目前医生正在研发新的治疗方法,以帮助缓解症状或延缓病情进展,但尚未找到阻止或治愈该疾病的手段。

image克里斯·约翰逊在对阵纽约喷气机队的NFL橄榄球比赛下半场到访赛场,2024年9月15日,周日,田纳西州纳什维尔。乔治·沃克四世 / 美联社

对约翰逊而言,病情进展迅速。在《早安美国》节目中,他借助一台设备发声,该设备仅通过他的眼球运动就能操作,传感器可捕捉到这些动作。

“就在一年多前,我还能抱起我7岁的女儿,让她对着生日蛋糕许愿,”约翰逊说,他表示这种疾病“会如此令人猝不及防”,原因有很多。

他和妻子布列塔尼·约翰逊一同出现在《早安美国》的节目现场,两人共育有四个孩子。

“我满脑子想的都是我们的孩子,他们还这么小,”布列塔尼回忆起丈夫最初确诊时自己的反应,“我们曾经拥有的生活已经成为过去,但我们仍然抱有希望。”

约翰逊说,他最初注意到自己右手无力。症状始于“一些细微的变化”,他告诉斯特拉罕,“比如我的握力不对劲了,不再像以前那样有力。”

约翰逊拥有10年NFL职业生涯,曾为田纳西泰坦、纽约喷气机和亚利桑那红雀队冲球推进9651码,地面得分55次。他是仅有的九名单赛季冲球超过2000码的跑卫之一,并于2009年为泰坦队创下这一纪录,同年他被评为年度最佳进攻球员。作为东卡罗来纳大学的首轮选秀球员,约翰逊在进入NFL的前三年每年都入选职业碗。

他表示,希望通过这次《早安美国》的采访,纠正人们对渐冻症以及患者的一些固有误解。

“首先,我想让大家知道,我还是我自己。渐冻症改变了我的身体机能,但并没有改变我的本心,”约翰逊补充道,“你的思维依然清晰。人们有时看到身体残疾,就会认为你内在不再是原来的那个人。我依然会思考,依然有梦想,依然深爱着我的家人。只是我的身体不再听使唤了。”

约翰逊是少数确诊后成为渐冻症研究倡导者的名人之一,已故演员埃里克·戴恩便是其中一员。该疾病的非正式名称“卢伽雷氏症”源自纽约洋基队球员卢伽雷,他在1930年代确诊后,让渐冻症获得了全球关注。

萨拉·莫纽斯科和斯蒂芬·史密斯为本报道撰稿。

Former NFL star Chris Johnson says he has been diagnosed with ALS

June 29, 2026 / 9:52 AM EDT / CBS News

Former NFL star Chris Johnson announced that he’s been diagnosed with ALS, also known as Lou Gehrig’s disease.

Johnson, now 40, said he received the diagnosis last year. He shared the news in a “Good Morning America” interview with Michael Strahan, a retired NFL player himself and co-anchor of the talk show. The interview aired Monday.

“If sharing my story helps even one person get diagnosed sooner, inspires more research, or gives another family hope, it’s worth it,” said Johnson.

He told Strahan that doctors believe he has “sporadic” ALS, because there’s no history of ALS in his family. The vast majority of cases — about 90% — are considered sporadic, meaning there isn’t an inherited or genetic link, according to the National Institutes of Health.

ALS, or Amyotrophic Lateral Sclerosis, is a progressive neurodegenerative disease that impacts nerve cells in the brain and spinal cord, severing the connection between the brain and muscles. People with the illness eventually lose their ability to walk, speak, eat and breathe, according to the ALS Association. Doctors are developing new treatments that help ease symptoms or slow down their progression, but they have not found a way to stop or cure it.

Chris Johnson visits the field during the second half of an NFL football game against the New York Jets, Sunday, Sept. 15, 2024, in Nashville, Tennessee. George Walker IV / AP

For Johnson, the disease progressed quickly. On “Good Morning America,” he used a device to speak for him, which he maneuvered with just eye movements that the machine picked up through sensors.

“Just over a year ago, I was picking up my 7-year-old daughter so she could make a wish for her birthday cake,” said Johnson, who said the disease “can be so shocking,” for a number of different reasons.

He appeared on “Good Morning America” beside his wife, Brittany Johnson, with whom he shares four children.

“All I could think about was our kids and how young they are,” she said, recalling her response when her husband was first diagnosed. “The life that we previously had is now a thing of the past, but we’re still hopeful.”

Johnson said he initially began to notice weakness in his right hand. Symptoms started with “little things,” he told Strahan, “like my grip didn’t feel right and I wasn’t as strong as I’ve always been.”

Over a 10-year NFL career, Johnson rushed for 9,651 yards, scoring 55 touchdowns on the ground for the Tennessee Titans, New York Jets and Arizona Cardinals. He is one of only nine running backs to rush for over 2,000 yards in a season, setting that mark for the Titans in 2009, when he was named Offensive Player of the Year. A first-round draft pick out of East Carolina, Johnson was a Pro Bowl selection in each of his first three years in the NFL.

He said he hopes his “Good Morning America” interview helps debunk some assumptions people may have about ALS and those who live with it.

“First, I want people to know that I’m still me. ALS has changed what my body can do, but it hasn’t changed who I am,” said Johnson, adding: “Your mind stays sharp. People sometimes look at the physical disability and assume you’re not still the same person inside. I still think the same, I still dream, I still love my family. My body just doesn’t cooperate.”

Johnson is among a handful of celebrities who became advocates for ALS research following their diagnoses, including the late actor Eric Dane. Gehrig, the New York Yankees player for whom the disease was informally named, brought global awareness to ALS after his diagnosis in the 1930s.

Sara Moniuszko and Stephen Smith contributed to this report.

评论

发表回复

您的邮箱地址不会被公开。 必填项已用 * 标注